https://transplantfirst.org/ckd-patient-education-the-missing-link/ Sat, 15 Feb 2020 18:38:45 +0000 hourly 1 https://wordpress.org/?v=7.0 https://transplantfirst.org/ckd-patient-education-the-missing-link/#comment-8 Mon, 02 Feb 2015 02:03:31 +0000 http://thewebwizz.com/testwp/?p=1982#comment-8 Having been involved in the industry surrounding my illness for many years, with a medical education and also having met Risa And reading her book, I was STILL not able to get things moving in time to avoid potential dialysis treatments! To add to it… I found myself in a deliberate puzzle that actually DEFERRED me from the Transplant Patient Selection Committee 3 times before I realized that it was a game. That was a year or more ago. I STILL am not able to begin pre-transplant testing at a different institution as they had a completely different process and rules! As well, NOONE Ever mentions your God given choice of Medical Management + Hospice depending on the illness and beliefs of the individual. I find that many people make decisions to transplant or do dialysis when they prefer to do neither based on making OTHERS happy… not themselves. Absolutely has been mind boggling and to me, this vision created within this Academy is of extreme importance to the point of finding shame within Long-standing organizations dedicated to CKD patients. I praise you Risa and trust me, once I feel my life back in my hands, you will hear and see me again. I join you and will join in this vision so as to prevent others from the same negligence that remains prevalent within this field! Thank you!

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