A Non-Profit 501c3 Kidney Patient Empowerment Organization

Community Partners & Friends

As the oldest and largest, independent kidney patient organization in America – AAKP (American Association of Kidney Patients) is dedicated to improving the lives and long-term outcomes of kidney patients through education, advocacy, patient engagement and the fostering of patient communities.

The American Society of Transplantation is dedicated to advancing the field of transplantation and improving patient care by promoting research, education, advocacy, organ donation, and service to the community.

 

At the Transplant Institute at Banner – University Medical Center Phoenix, our experienced physicians and support teams care for patients in need of kidney, pancreas and liver transplants, and provide comprehensive care to people with advanced liver disease.

CareDX’s mission is to transform  transplant patient care through novel surveillance management solutions.

CareDX brings artificial intelligence to transplant care by partnering to improve transplant  outcomes.

The Erma Bombeck Project  mission is to increase organ donation awareness and registration, while educating the public about the option of living kidney donation.

It’s campaign, “Save A Life. It’s In You.”  aims to narrow the gap between the number of individuals desperately waiting for a kidney, and the number of kidneys available.  Download PDF Brochure : Save A Life It’s In You 

Watch Videos on the Donor Experience.

Eurofins | Transplant Genomics aims to improve transplant outcomes through molecular diagnostic tests that detect early signs of graft injury, differentiate among actionable causes, and enable optimization of therapy.

Learn more about a non-invasive alternative to surveillance biopsies for kidney transplant recipients at the link below:

https://transplantgenomics.com/patient-frequently-asked-questions/

Get Ahead of Rejection

Have you ever heard of silent rejection before? Silent rejection, also known as subclinical acute rejection, or subAR, is the earliest form of rejection in kidney transplant recipients. This form of rejection is extremely common and can have significant consequences if left undetected and untreated. However, the earlier silent rejection is identified or ruled out, the sooner you can get back on the path of healthy living. Learn how to get ahead of silent rejection by visiting www.GetAheadofRejection.com

Kidneys for Kids is all about locating suitable living kidney donors for children in need of transplant. Their purpose is to increase awareness about the importance of living kidney donation, especially for pediatric patients.

Kidneys for Kids also provides family support by offering financial support to donor families and children undergoing transplants.

The core mission of the  National Kidney Foundation of Arizona (NKF AZ)  is to improve the quality of life for Arizonans with kidney failure. The Foundation’s many programs bring help and hope to thousands of kidney patients, dialysis patients, waitlisted transplant patients, and post-transplant recipients alike. NKF AZ ‘s kidney health initiatives provide community education & resources about kidney health and prevention.

Additionally, NKF AZ provides emergency patient aid to kidney patients and transplant recipients across Arizona —while also advocating for organ donation awareness.

PatientPoint® is  the  patient engagement platform that offers digital engagement solutions for more effective patient interactions across the entire patient care journey.

From patient acquisition to in-office and hospital engagement to telehealth and remote care, PatientPoint is there, helping drive better health outcomes, and a superior patient experience.

The PKD Foundation (PKDF) is the only organization in the United States solely dedicated to finding treatments and a cure for polycystic kidney disease (PKD).

The PKDF funds research, education, advocacy, peer mentor support—and disease awareness on a national and local level.

Their goal is simple: To deliver treatments and a cure for PKD.  

The American Society of Transplantation “Power2Save” is dedicated to advancing the field of transplantation and improving patient care by promoting research, education, advocacy, organ donation, and service to the community.

  Presbyterian’s Transplant Services in Albuquerque, New Mexico provides a multidisciplinary team approach with a focus on patient care throughout every step of the transplant process. For patients who suffer from renal failure, a transplant can be a life-changing gift. Presbyterian is proud to achieve multiorgan transplant facility certification in 2016, with the addition of pancreas transplants, to better serve residents of New Mexico, as well as surrounding areas.

Sanofi  chases miracles of science to improve people’s lives.

Sanofi’s commitment to patients extends beyond developing therapies. They support advocacy programs, educational materials, and other resources to inform and empower patients and their families. They are determined to find solutions by bringing breakthrough medicines and vaccines to patients and communities. Sanofi is a company that listens, acts, and leads patients by improving the quality of their engagement  and by conducting themselves in a manner reflective of patient expectations—to be seen, heard and felt.  

Square Knot Health collaborates with the patient’s nephrologist and leading kidney transplant centers to help patients and their family members navigate the journey from kidney failure to kidney transplant.  In addition to providing education, pre-assessment, and ongoing support (for recipients and their potential kidney donors), Square Knot Health provides patient Navigators, (highly trained kidney transplant recipients or donors) to assist the process of getting listed and finding potential donors—prior to their need for dialysis, when possible.   Using Telehealth visits, patients can meet from home providing they reside in Maine, Massachusetts, New Hampshire, or Florida.    https://www.squareknothealth.com/

UC Davis Health Transplant Center’s goal is to provide potential transplant recipients with information about the risks and benefits of transplant, the evaluation process, the waiting list, surgery and hospitalization, medications and follow-up care. UC Davis has a large team of professionals who are ready to help you in any way possible during this important time. 

UC Davis was the first transplant center to offer their patients access to the online Donor Seeker Program from their website.

UT Health San Antonio has been dedicated to making sure patients have a better quality of life for more than 40 years. 

UT Health San Antonio has become a leader in kidney liver and lung transplants by combining their expertise, devotion to patient-centered care and dedication in transplant research.

TransplantFirst Academy’s (TFA) mission is to empower preemptive (live-donor) kidney transplant opportunities through educational resources, inspiration and proactive patient self-advocacy.

TFA exists to ensure no patient is denied the right to proactively explore preemptive kidney transplant opportunities

Transplant Village is comprised of people who have had life-changing experiences with Northwestern Medicine’s Comprehensive Transplant Center (CTC). As a grateful group of organ recipients and donors, they’re all about giving back.

Transplant Village‘s Council’s goals include: financially supporting the CTC’s groundbreaking organ transplantation research and programs by establishing an ongoing culture of philanthropy. They invite  recipients, families, and others to unite under the belief that great achievements come from shared passion and vision .  

Veloxis Pharmaceuticals (An Asahi Kasei company), partnering in care and innovation in medicine.

Veloxis knows that a transplant is a life-changing procedure, yet it does not come without its challenges. That’s why Veloxis’ mission is to see and respond to the challenges along the transplant journey. They focus on developing new therapies and programs to help transplant healthcare providers and the patients they treat.

Learn more here by watching this video

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